The road not taken: Forgoing disease-directed treatments in advanced cancer. A rejoinder to ‘Concepts of health, ethics, and communication in shared decision making’ by Lauris Kaldjian

Authors

  • Larry D. Cripe Indiana University School of Medicine
  • Richard M. Frankel Indiana University School of Medicine

DOI:

https://doi.org/10.1558/cam.36371

Keywords:

forum discussion, Lauris Kaldjian

Author Biographies

  • Larry D. Cripe, Indiana University School of Medicine
    Larry Cripe is an Associate Professor of Medicine at the Indiana University School of Medicine and the Editor-in-Chief of the NCI PDQ Supportive and Palliative Care Board. His current research aims to develop computer-supported communication and decision-making frameworks to increase the likelihood that people with poor prognosis malignancies receive end of life (EOL) care consistent with their preferences and goals. In addition, he and Richard M Frankel study the potential mechanisms of the benefit of empathy in patient-oncologist interactions.
  • Richard M. Frankel, Indiana University School of Medicine
    Richard M. Frankel is professor of medicine and geriatrics at the Indiana University School of Medicine and is the director of the Advanced Scholars Program for Internists in Research and Education (ASPIRE). He is also a senior researcher in the Center for Healthcare Information and Communication at the Richard L. Roudebush Indianapolis Veterans Administration and holds a staff appointment in the Education Institute of the Cleveland Clinic. To date, he has published more than 250 scientific papers about communication in healthcare and has edited 7 books.

References

Braddock, C. H., Edwards, K. A., Hasenberg, N. M., Laidley, T. L. and Levinson, W. (1999) Informed decision making in outpatient practice: Time to get back to basics. The Journal of the American Medical Association 282 (24): 2313–2320. https://doi.org/10.1001/jama.282.24.2313

Buiting, H. M., Terpstra, W., Dalhuisen, F., Gunnink-Boonstra, N., Sonke, G. S. and den Hartogh, G. (2013) The facilitating role of chemotherapy in the palliative phase of cancer: Qualitative interviews with advanced cancer patients. PLoS One 8 (11): e77959. https://doi.org/10.1371/journal.pone.0077959

Connors, A. F., Dawson, N. V., Desbiens, N. A., Fulkerson, W. J., Goldman, L., Harrell, F. E., Knaus, W. A., Lynn, J., Oye, R. K., Phillips, R. S., Teno, J. and Wenger, N. S. (1995) Erratum: A controlled trial to improve care for seriously ill hospitalized patients: The study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT). Journal of the American Medical Association 274 (20): 1591–1598. https://doi.org/10.1001/jama.1995.03530200027032

Cottingham, A. H., Cripe, L. D., Rand, K. L. and Frankel, R. M. (2017) My future is now: A qualitative study of life for persons living with advanced cancer. American Journal of Hospice & Palliative Medicine 35 (4): 640–646. https://doi.org/10.1177/1049909117734826

Earle, C. C., Landrum, M. B., Souza, J. M., Neville, B. A., Weeks, J. C. and Ayanian, J. Z. (2008) Aggressiveness of cancer care near the end of life: Is it a quality-of-care issue? Journal of Clinical Oncology 26 (23): 3860–3866. https://doi.org/10.1200/JCO.2007.15.8253

Finucane, T. E. (1999) How gravely ill becomes dying: A key to end-of-life care. Journal of the American Medical Association 282 (17): 1670–1672. https://doi.org/10.1001/jama.282.17.1670

Gattellari, M., Voigt, K. J., Butow, P. N. and Tattersall, M. H. (2002) When the treatment goal is not cure: Are cancer patients equipped to make informed decisions? Journal of Clinical Oncology 20 (2): 503–513. https://doi.org/10.1200/JCO.2002.20.2.503

Holm, S. (2010) Euthanasia: Agreeing to disagree? Medincine, Health Care and Philosophy 13 (4): 399–402. https://doi.org/10.1007/s11019-010-9264-1

Irby, D. M. and Hamstra, S. J. (2016) Parting the clouds: Three professionalism frameworks in medical education. Academic Medicine 91 (12): 1606–1611. https://doi.org/10.1097/ACM.0000000000001190

Kaldjian, L. C. (2017) Concepts of health, ethics, and communication in shared decision making. Communication & Medicine 14 (1): 83–95. https://doi.org/10.1558/cam.32845

Matthias, M. S., Salyers, M. P. and Frankel, R. M. (2013) Re-thinking shared decision-making: Context matters. Patient Education and Counseling 91 (2): 176–179. https://doi.org/10.1016/j.pec.2013.01.006

McKneally, M. F. and Martin, D. K. (2000) An entrustment model of consent for surgical treatment of life-threatening illness: Perspective of patients requiring esophagectomy. Journal of Thoracic and Cardiovascular Surgery 120 (2): 264–269. https://doi.org/10.1067/mtc.2000.106525

Norton, S. A., Metzger, M., DeLuca, J., Alexander, S. C., Quill, T. E. and Gramling, R. (2013) Palliative care communication: Linking patients’ prognoses, values, and goals of care. Research in Nursing & Health 36 (6): 582–590. https://doi.org/10.1002/nur.21563

Novack, D. H., Plumer, R., Smith, R. L., Ochitill, H., Morrow, G. R. and Bennett, J. M. (1979) Changes in physicians’ attitudes toward telling the cancer patient. Journal of the American Medical Association 241 (9): 897–900. https://doi.org/10.1001/jama.1979.03290350017012

Oken, D. (1961) What to tell cancer patients. A study of medical attitudes. Journal of the American Medical Association 175 (13): 1120-1128. https://doi.org/10.1001/jama.1961.03040130004002

Rand, K. L., Banno, D. A., Shea, A. M. and Cripe, L. D. (2016) Life and treatment goals of patients with advanced, incurable cancer. Supportive Care in Cancer 24 (7): 2953–2962. https://doi.org/10.1007/s00520-016-3113-6

Schildmann, J., Ritter, P., Salloch, S., Uhl, W. and Vollmann, J. (2013) ‘One also needs a bit of trust in the doctor…’: A qualitative interview study with pancreatic cancer patients about their perceptions and views on information and treat­ment decision-making. Annals of Oncology 24 (9): 2444–2449. https://doi.org/10.1093/annonc/mdt193

Teno, J. M., Casarett, D., Spence, C. and Connor, S. (2012) It is ‘too late’ or is it? Bereaved family member perceptions of hospice referral when their family member was on hospice for seven days or less. Journal of Pain & Symptom Management 43 (4): 732–738. https://doi.org/10.1016/j.jpainsymman.2011.05.012

Unroe, K. T., Greiner, M. A., Hernandez, A. F., Whellan, D. J., Kaul, P., Schulman, K. A., Peterson, E. D. and Curtis, L. H. (2011) Resource use in the last 6 months of life among medicare beneficiaries with heart failure, 2000-2007. Archives of Internal Medicine 171 (3): 196–203. https://doi.org/10.1001/archinternmed.2010.371

Wright, A. A., Hatfield, L. A., Earle, C. C. and Keating, N. L. (2014) End-of-life care for older patients with ovarian cancer is intensive despite high rates of hospice use. Journal of Clinical Oncology 32 (31): 3534–3539. https://doi.org/10.1200/JCO.2014.55.5383

Zier, L. S., Sottile, P. D., Hong, S. Y., Weissfield, L. A. and White, D. B. (2012) Surrogate decision makers’ interpretation of prognostic informa­tion: A mixed-methods study. Annals of Internal Medicine 156 (5): 360–366. https://doi.org/10.7326/0003-4819-156-5-201203060-00008

Zimmermann, C., Burman, D., Swami, N., Krzyzanowska, M. K., Leigh, N., Moore, M., Rodin, G and Tannock, I. (2011) Determinants of quality of life in patients with advanced cancer. Supportive Care in Cancer 19 (5): 621–629. https://doi.org/10.1007/s00520-010-0866-1

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Published

2018-10-26

Issue

Section

Forum Discussion

How to Cite

Cripe, L. D., & Frankel, R. M. (2018). The road not taken: Forgoing disease-directed treatments in advanced cancer. A rejoinder to ‘Concepts of health, ethics, and communication in shared decision making’ by Lauris Kaldjian. Communication and Medicine, 14(3), 277-281. https://doi.org/10.1558/cam.36371