Communication & Medicine, Vol 14, No 3 (2017)

The road not taken: Forgoing disease-directed treatments in advanced cancer. A rejoinder to ‘Concepts of health, ethics, and communication in shared decision making’ by Lauris Kaldjian

Larry D. Cripe, Richard M. Frankel
Issued Date: 26 Oct 2018

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DOI: 10.1558/cam.36371


Braddock, C. H., Edwards, K. A., Hasenberg, N. M., Laidley, T. L. and Levinson, W. (1999) Informed decision making in outpatient practice: Time to get back to basics. The Journal of the American Medical Association 282 (24): 2313–2320.

Buiting, H. M., Terpstra, W., Dalhuisen, F., Gunnink-Boonstra, N., Sonke, G. S. and den Hartogh, G. (2013) The facilitating role of chemotherapy in the palliative phase of cancer: Qualitative interviews with advanced cancer patients. PLoS One 8 (11): e77959.

Connors, A. F., Dawson, N. V., Desbiens, N. A., Fulkerson, W. J., Goldman, L., Harrell, F. E., Knaus, W. A., Lynn, J., Oye, R. K., Phillips, R. S., Teno, J. and Wenger, N. S. (1995) Erratum: A controlled trial to improve care for seriously ill hospitalized patients: The study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT). Journal of the American Medical Association 274 (20): 1591–1598.

Cottingham, A. H., Cripe, L. D., Rand, K. L. and Frankel, R. M. (2017) My future is now: A qualitative study of life for persons living with advanced cancer. American Journal of Hospice & Palliative Medicine 35 (4): 640–646.

Earle, C. C., Landrum, M. B., Souza, J. M., Neville, B. A., Weeks, J. C. and Ayanian, J. Z. (2008) Aggressiveness of cancer care near the end of life: Is it a quality-of-care issue? Journal of Clinical Oncology 26 (23): 3860–3866.

Finucane, T. E. (1999) How gravely ill becomes dying: A key to end-of-life care. Journal of the American Medical Association 282 (17): 1670–1672.

Gattellari, M., Voigt, K. J., Butow, P. N. and Tattersall, M. H. (2002) When the treatment goal is not cure: Are cancer patients equipped to make informed decisions? Journal of Clinical Oncology 20 (2): 503–513.

Holm, S. (2010) Euthanasia: Agreeing to disagree? Medincine, Health Care and Philosophy 13 (4): 399–402.

Irby, D. M. and Hamstra, S. J. (2016) Parting the clouds: Three professionalism frameworks in medical education. Academic Medicine 91 (12): 1606–1611.

Kaldjian, L. C. (2017) Concepts of health, ethics, and communication in shared decision making. Communication & Medicine 14 (1): 83–95.

Matthias, M. S., Salyers, M. P. and Frankel, R. M. (2013) Re-thinking shared decision-making: Context matters. Patient Education and Counseling 91 (2): 176–179.

McKneally, M. F. and Martin, D. K. (2000) An entrustment model of consent for surgical treatment of life-threatening illness: Perspective of patients requiring esophagectomy. Journal of Thoracic and Cardiovascular Surgery 120 (2): 264–269.

Norton, S. A., Metzger, M., DeLuca, J., Alexander, S. C., Quill, T. E. and Gramling, R. (2013) Palliative care communication: Linking patients’ prognoses, values, and goals of care. Research in Nursing & Health 36 (6): 582–590.

Novack, D. H., Plumer, R., Smith, R. L., Ochitill, H., Morrow, G. R. and Bennett, J. M. (1979) Changes in physicians’ attitudes toward telling the cancer patient. Journal of the American Medical Association 241 (9): 897–900.

Oken, D. (1961) What to tell cancer patients. A study of medical attitudes. Journal of the American Medical Association 175 (13): 1120-1128.

Rand, K. L., Banno, D. A., Shea, A. M. and Cripe, L. D. (2016) Life and treatment goals of patients with advanced, incurable cancer. Supportive Care in Cancer 24 (7): 2953–2962.

Schildmann, J., Ritter, P., Salloch, S., Uhl, W. and Vollmann, J. (2013) ‘One also needs a bit of trust in the doctor…’: A qualitative interview study with pancreatic cancer patients about their perceptions and views on information and treat­ment decision-making. Annals of Oncology 24 (9): 2444–2449.

Teno, J. M., Casarett, D., Spence, C. and Connor, S. (2012) It is ‘too late’ or is it? Bereaved family member perceptions of hospice referral when their family member was on hospice for seven days or less. Journal of Pain & Symptom Management 43 (4): 732–738.

Unroe, K. T., Greiner, M. A., Hernandez, A. F., Whellan, D. J., Kaul, P., Schulman, K. A., Peterson, E. D. and Curtis, L. H. (2011) Resource use in the last 6 months of life among medicare beneficiaries with heart failure, 2000-2007. Archives of Internal Medicine 171 (3): 196–203.

Wright, A. A., Hatfield, L. A., Earle, C. C. and Keating, N. L. (2014) End-of-life care for older patients with ovarian cancer is intensive despite high rates of hospice use. Journal of Clinical Oncology 32 (31): 3534–3539.

Zier, L. S., Sottile, P. D., Hong, S. Y., Weissfield, L. A. and White, D. B. (2012) Surrogate decision makers’ interpretation of prognostic informa­tion: A mixed-methods study. Annals of Internal Medicine 156 (5): 360–366.

Zimmermann, C., Burman, D., Swami, N., Krzyzanowska, M. K., Leigh, N., Moore, M., Rodin, G and Tannock, I. (2011) Determinants of quality of life in patients with advanced cancer. Supportive Care in Cancer 19 (5): 621–629.


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