The evidence for relationship-centred practice in aphasia rehabilitation
DOI:
https://doi.org/10.1558/jircd.v1i2.277Keywords:
aphasia, rehabilitation, relationship-centredAbstract
The aim of this article is to present an argument, supported by evidence, that relationship-centred care should be at the heart of aphasia rehabilitation. This conclusion stems from a number of studies that have explored the perspectives of people with aphasia and the interaction between them, their families and their treating speech-language pathologists. It is our contention that interactional research has highlighted the importance of the relationship and the tensions in the relationships between the client (the person with aphasia and their family) and their treating speech-language pathologist. Hence the state-of-the-art interactional research in aphasia rehabilitation has supported the findings from the broader health literature about the centrality of the relationship in client care. This article therefore describes the values-based clinical approach of relationship-centred aphasia rehabilitation.
References
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Coelho, C., M. Sinotte and J. Duffy (2008). Schuell’s stimulation approach to rehabilitation. In R. Chapey Language Intervention Strategies in Aphasia and Related Neurogenic Communication Disorders 403–449. Philadelphia, PA, Lippincott, Williams & Wilkins.
Cott, C. A., R. Wiles and R. Devitt (2007). Continuity, transition and participation: Preparing clients for life in the community post-stroke. Disability & Rehabilitation 29 (20–21): 1566–1574. doi:10.1080/09638280701618588
Damico, J. S., M. C. O. Oelschlaeger and M. Simmons-Mackie (1999). Qualitative methods in aphasia research. Aphasiology 13 (9–11): 667–679. doi:10.1080/026870399401777
Davidson, B., T. Howe, L. Worrall, L. Hickson and L. Togher (2008). Social participation for older people with aphasia: the impact of communication disability on friendships. Topics in Stroke Rehabilitation 15 (4): 325–340. doi:10.1310/tsr1504-325
Denman, A. (1998). Determining the needs of spouses caring for aphasic partners. Disability & Rehabilitation 2 (11): 411–423. doi:10.3109/09638289809166103
DiCicco-Bloom, B. and B. F. Crabtree (2006). The qualitative research interview. Medical Education 40 (4): 314–321. doi:10.1111/j.1365-2929.2006.02418.x
Elman, R. (2005). Social and life participation approaches to aphasia intervention. In L. LaPointe Aphasia and Related Neurogenic Language Disorders 39–50. New York, Thieme.
Faulkner, A. (1998). When the News is Bad: A Guide for Health Professionals. Cheltenham, UK, Stanley Thornes Publishers.
Faulkner, A., J. Argent, A. Jones and C. O’Keefe (1995). Improving the skills of doctors in giving distressing information. Medical Education 29 (4): 303–307. doi:10.1111/j.1365-2923.1995.tb02853.x
Graneheim, U. H. and B. Lundman (2004). Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Education Today 24 (2): 105–112. doi:10.1016/j.nedt.2003.10.001
Hersh, D. (2001). Experiences of ending aphasia therapy. International Journal of Language & Communication Disorders 36 (Suppl): 80–85. doi:10.3109/13682820109177863
Hersh, D. (2003). ‘Weaning’ clients from aphasia therapy: Speech pathologists’ strategies for discharge. Aphasiology 17 (11): 1007–1029. doi:10.1080/02687030344000364
Hersh, D. (2009). How do people with aphasia view their discharge from therapy? Aphasiology 23 (3): 331–350. doi:10.1080/02687030701764220
Holland, A. (2007). Counseling in Communication Disorders: A Wellness Perspective. San Diego, CA: Plural Publishing.
Howe, T. J., L. E. Worrall and L. M. H. Hickson (2008a). Interviews with people with aphasia: Environmental factors that influence their community participation. Aphasiology 22 (10): 1–29. doi:10.1080/02687030701640941
Howe, T. J., L. E. Worrall and L. M. H. Hickson (2008b). Observing people with aphasia: Environmental factors that influence their community participation. Aphasiology 22 (6): 618–643. doi:10.1080/02687030701536024
Hughes, J. C., C. Bamford and C. May (2008). Types of centredness in health care: Themes and concepts. Medicine, Health Care & Philosophy 11 (4): 455–463. doi:10.1007/s11019-008-9131-5
Kagan, A. (1998). Supported conversation for adults with aphasia: methods and resources for training conversation partners. Aphasiology 12 (9): 816–830. doi:10.1080/02687039808249575
Kertesz, A. (2006). Western Aphasia Battery – Revised. San Antonio, TX, Harcourt Assessment.
Le Dorze, G., V. Tremblay and C. Croteau (2009). A qualitative longitudinal case study of a daughter’s adaptation process to her father’s aphasia and stroke. Aphasiology 23 (4): 483–502. doi:10.1080/02687030801890909
Le Dorze, G. and C. Brassard (1995). A description of the consequences of aphasia on aphasic persons and their relatives and friends, based on the WHO model of chronic disease. Aphasiology 9 (3): 239–255. doi:10.1080/02687039508248198
Maclean, N. and P. Pound (2000). A critical review of the concept of patient motivation in the literature on physical rehabilitation. Social Science and Medicine 50 (4): 495–506.
MacLeod, R. and K. M. McPherson (2007). Care and compassion: Part of person-centred rehabilitation, inappropriate response or a forgotten art? Disability & Rehabilitation 29 (20–21): 1589–1595. doi:10.1080/09638280701618729
Mertens, D. M. and J. McLaughlin (2004). Research and Evaluation Methods in Special Education. Thousand Oaks, CA, Corwin Press.
Nickels, L. A. (ed.) (2002). Cognitive Neuropsychological Approaches to Spoken Word Production in Aphasia. Hove, UK, Psychology Press.
Parr, S. (2007). Living with severe aphasia: Tracking social exclusion. Aphasiology 21 (1): 98–123. doi:10.1080/02687030600798337
Parr, S., S. Byng and S. Gilpin (1997). Talking about Aphasia. Buckingham, Open University Press.
Parr, S., J. Duchan and C. Pound (eds) (2003). Aphasia Inside Out: Reflections on Communication Disability. Buckingham: Open University Press.
Patton, M. Q. (2002). Qualitative Research and Evaluation Methods. Thousand Oaks, CA, Sage Publications.
Penney, J., M. J. MacKay-Lyons and A. McDonald (2007). Evidence-based stroke rehabilitation: Case analysis using the International Classification of Functioning, Disability and Health Framework. Physiotherapy Canada 59 (1): 22–36. doi:10.3138/ptc.59.1.22
Poland, D. B. (2002). Transcription quality. In J. Gubrium and J. A. Holstein (eds) Handbook of Interview Research: Context and Method, 629–649. Thousand Oaks, CA: Sage.
QSR International Pty Ltd (2006). NVivo qualitative data analysis software. Doncaster, Vic, Australia, QSR International Pty Ltd.
Salter, K., J. W. Jutai, R. Teasell, N. C. Foley, J. Bitensky and M. Bayley (2005). Issues for selection of outcome measures in stroke rehabilitation: ICF participation. Disability and Rehabilitation 27 (9): 507–528. doi:10.1080/0963828040008552
Sandelowski, M. (2000). Whatever happened to qualitative description? Research in Nursing and Health 23 (4): 334–340. doi:10.1002/1098-240X(200008)23:4<334::AID-NUR9>3.0.CO;2-G
Schepers, V. P. M., M. Ketelaar, I. G. van de Port, J. M. Vissere-Meily and E. Lindeman (2007). Comparing contents of functional outcome measures in stroke rehabilitation using the International Classification of Functioning, Disability and Health. Disability and Rehabilitation 29 (3): 221–230. doi:10.1080/09638280600756257
Shadden, B. (2007). Rebuilding identity through stroke support groups: Embracing the person with aphasia and significant others. In R. Elman (ed.) Group Treatment of Neurogenic Communication Disorders 111-126. San Diego, CA: Plural Publishing.
Shadden, B., F. Hagstrom and P. R. Koski (2008). Neurogenic Communication Disorders: Life Stories and the Narrative Self. San Diego, CA: Plural Publishers.
Sherratt, S., L. Worrall, C. Pearson, T. Howe, D. Hersh, B. Davidson and A. Ferguson (submitted). ‘Well it has to be language related’: Speech-language pathologists’ goals for people with aphasia and their families compared with clinical guidelines. International Journal of Speech-Language Pathology.
Stucki, G., B. Ustun and J. Melvin (2005). Applying the ICF for the acute hospital and early post-acute rehabilitation facilities. Disability and Rehabilitation 27 (7/8): 349–352. doi:10.1080/09638280400013941
Visser-Meily, J. M. A., M. Post, J. W. Gorter, S. B. Berlekom, T. Van Den Bos and E. Lindeman (2006). Rehabilitation of stroke patients needs a family-centred approach. Disability & Rehabilitation 28 (24): 1557–1561. doi:10.1080/09638280600648215
Whitworth, A., J. Webster and D. Howard (2005). A Cognitive Neuropsychological Approach to Assessment and Intervention In Aphasia: A Clinician’s Guide. New York, Psychology Press.
WHO (2001). ICF: International Classification of Functioning, Disability and Health. Geneva, World Health Organisation.
Worrall, L., B. Davidson, A. Ferguson, A. Hersh, T. Howe and S. Sherratt (in press). What people with aphasia want: Their goals according to the ICF. Aphasiology.
Bays, C. L. (2001). Older adults’ descriptions of hope after a stroke. Rehabilitation Nursing 26 (1): 18.
Beach, M. C. and T. Inui (2006). Relationship-centered care: A constructive reframing. Journal of General Internal Medicine 21 (S1): S3–S8. doi:10.1111/j.1525-1497.2006.00302.x
Brown, K., L. Worrall, B. Davidson and T. Howe (2008). Living Successfully with Aphasia: Exploring the Insider Perspective. 13th International Aphasia Rehabilitation Conference, Ljubljana, Slovenia.
Chapey, R., J. F. Duchan, R. J. Elman, L. J. Garcia, J. Lyon and N. Simmons-Mackie (2001). Life participation approach to aphasia: a statement of values for the future … In R. Chapey Language Intervention Strategies in Aphasia and Related Neurogenic Communication Disorders 235–245. Baltimore, MD: Lippincott, Williams and Wilkins.
Coelho, C., M. Sinotte and J. Duffy (2008). Schuell’s stimulation approach to rehabilitation. In R. Chapey Language Intervention Strategies in Aphasia and Related Neurogenic Communication Disorders 403–449. Philadelphia, PA, Lippincott, Williams & Wilkins.
Cott, C. A., R. Wiles and R. Devitt (2007). Continuity, transition and participation: Preparing clients for life in the community post-stroke. Disability & Rehabilitation 29 (20–21): 1566–1574. doi:10.1080/09638280701618588
Damico, J. S., M. C. O. Oelschlaeger and M. Simmons-Mackie (1999). Qualitative methods in aphasia research. Aphasiology 13 (9–11): 667–679. doi:10.1080/026870399401777
Davidson, B., T. Howe, L. Worrall, L. Hickson and L. Togher (2008). Social participation for older people with aphasia: the impact of communication disability on friendships. Topics in Stroke Rehabilitation 15 (4): 325–340. doi:10.1310/tsr1504-325
Denman, A. (1998). Determining the needs of spouses caring for aphasic partners. Disability & Rehabilitation 2 (11): 411–423. doi:10.3109/09638289809166103
DiCicco-Bloom, B. and B. F. Crabtree (2006). The qualitative research interview. Medical Education 40 (4): 314–321. doi:10.1111/j.1365-2929.2006.02418.x
Elman, R. (2005). Social and life participation approaches to aphasia intervention. In L. LaPointe Aphasia and Related Neurogenic Language Disorders 39–50. New York, Thieme.
Faulkner, A. (1998). When the News is Bad: A Guide for Health Professionals. Cheltenham, UK, Stanley Thornes Publishers.
Faulkner, A., J. Argent, A. Jones and C. O’Keefe (1995). Improving the skills of doctors in giving distressing information. Medical Education 29 (4): 303–307. doi:10.1111/j.1365-2923.1995.tb02853.x
Graneheim, U. H. and B. Lundman (2004). Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Education Today 24 (2): 105–112. doi:10.1016/j.nedt.2003.10.001
Hersh, D. (2001). Experiences of ending aphasia therapy. International Journal of Language & Communication Disorders 36 (Suppl): 80–85. doi:10.3109/13682820109177863
Hersh, D. (2003). ‘Weaning’ clients from aphasia therapy: Speech pathologists’ strategies for discharge. Aphasiology 17 (11): 1007–1029. doi:10.1080/02687030344000364
Hersh, D. (2009). How do people with aphasia view their discharge from therapy? Aphasiology 23 (3): 331–350. doi:10.1080/02687030701764220
Holland, A. (2007). Counseling in Communication Disorders: A Wellness Perspective. San Diego, CA: Plural Publishing.
Howe, T. J., L. E. Worrall and L. M. H. Hickson (2008a). Interviews with people with aphasia: Environmental factors that influence their community participation. Aphasiology 22 (10): 1–29. doi:10.1080/02687030701640941
Howe, T. J., L. E. Worrall and L. M. H. Hickson (2008b). Observing people with aphasia: Environmental factors that influence their community participation. Aphasiology 22 (6): 618–643. doi:10.1080/02687030701536024
Hughes, J. C., C. Bamford and C. May (2008). Types of centredness in health care: Themes and concepts. Medicine, Health Care & Philosophy 11 (4): 455–463. doi:10.1007/s11019-008-9131-5
Kagan, A. (1998). Supported conversation for adults with aphasia: methods and resources for training conversation partners. Aphasiology 12 (9): 816–830. doi:10.1080/02687039808249575
Kertesz, A. (2006). Western Aphasia Battery – Revised. San Antonio, TX, Harcourt Assessment.
Le Dorze, G., V. Tremblay and C. Croteau (2009). A qualitative longitudinal case study of a daughter’s adaptation process to her father’s aphasia and stroke. Aphasiology 23 (4): 483–502. doi:10.1080/02687030801890909
Le Dorze, G. and C. Brassard (1995). A description of the consequences of aphasia on aphasic persons and their relatives and friends, based on the WHO model of chronic disease. Aphasiology 9 (3): 239–255. doi:10.1080/02687039508248198
Maclean, N. and P. Pound (2000). A critical review of the concept of patient motivation in the literature on physical rehabilitation. Social Science and Medicine 50 (4): 495–506.
MacLeod, R. and K. M. McPherson (2007). Care and compassion: Part of person-centred rehabilitation, inappropriate response or a forgotten art? Disability & Rehabilitation 29 (20–21): 1589–1595. doi:10.1080/09638280701618729
Mertens, D. M. and J. McLaughlin (2004). Research and Evaluation Methods in Special Education. Thousand Oaks, CA, Corwin Press.
Nickels, L. A. (ed.) (2002). Cognitive Neuropsychological Approaches to Spoken Word Production in Aphasia. Hove, UK, Psychology Press.
Parr, S. (2007). Living with severe aphasia: Tracking social exclusion. Aphasiology 21 (1): 98–123. doi:10.1080/02687030600798337
Parr, S., S. Byng and S. Gilpin (1997). Talking about Aphasia. Buckingham, Open University Press.
Parr, S., J. Duchan and C. Pound (eds) (2003). Aphasia Inside Out: Reflections on Communication Disability. Buckingham: Open University Press.
Patton, M. Q. (2002). Qualitative Research and Evaluation Methods. Thousand Oaks, CA, Sage Publications.
Penney, J., M. J. MacKay-Lyons and A. McDonald (2007). Evidence-based stroke rehabilitation: Case analysis using the International Classification of Functioning, Disability and Health Framework. Physiotherapy Canada 59 (1): 22–36. doi:10.3138/ptc.59.1.22
Poland, D. B. (2002). Transcription quality. In J. Gubrium and J. A. Holstein (eds) Handbook of Interview Research: Context and Method, 629–649. Thousand Oaks, CA: Sage.
QSR International Pty Ltd (2006). NVivo qualitative data analysis software. Doncaster, Vic, Australia, QSR International Pty Ltd.
Salter, K., J. W. Jutai, R. Teasell, N. C. Foley, J. Bitensky and M. Bayley (2005). Issues for selection of outcome measures in stroke rehabilitation: ICF participation. Disability and Rehabilitation 27 (9): 507–528. doi:10.1080/0963828040008552
Sandelowski, M. (2000). Whatever happened to qualitative description? Research in Nursing and Health 23 (4): 334–340. doi:10.1002/1098-240X(200008)23:4<334::AID-NUR9>3.0.CO;2-G
Schepers, V. P. M., M. Ketelaar, I. G. van de Port, J. M. Vissere-Meily and E. Lindeman (2007). Comparing contents of functional outcome measures in stroke rehabilitation using the International Classification of Functioning, Disability and Health. Disability and Rehabilitation 29 (3): 221–230. doi:10.1080/09638280600756257
Shadden, B. (2007). Rebuilding identity through stroke support groups: Embracing the person with aphasia and significant others. In R. Elman (ed.) Group Treatment of Neurogenic Communication Disorders 111-126. San Diego, CA: Plural Publishing.
Shadden, B., F. Hagstrom and P. R. Koski (2008). Neurogenic Communication Disorders: Life Stories and the Narrative Self. San Diego, CA: Plural Publishers.
Sherratt, S., L. Worrall, C. Pearson, T. Howe, D. Hersh, B. Davidson and A. Ferguson (submitted). ‘Well it has to be language related’: Speech-language pathologists’ goals for people with aphasia and their families compared with clinical guidelines. International Journal of Speech-Language Pathology.
Stucki, G., B. Ustun and J. Melvin (2005). Applying the ICF for the acute hospital and early post-acute rehabilitation facilities. Disability and Rehabilitation 27 (7/8): 349–352. doi:10.1080/09638280400013941
Visser-Meily, J. M. A., M. Post, J. W. Gorter, S. B. Berlekom, T. Van Den Bos and E. Lindeman (2006). Rehabilitation of stroke patients needs a family-centred approach. Disability & Rehabilitation 28 (24): 1557–1561. doi:10.1080/09638280600648215
Whitworth, A., J. Webster and D. Howard (2005). A Cognitive Neuropsychological Approach to Assessment and Intervention In Aphasia: A Clinician’s Guide. New York, Psychology Press.
WHO (2001). ICF: International Classification of Functioning, Disability and Health. Geneva, World Health Organisation.
Worrall, L., B. Davidson, A. Ferguson, A. Hersh, T. Howe and S. Sherratt (in press). What people with aphasia want: Their goals according to the ICF. Aphasiology.
Published
2011-01-25
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Articles
How to Cite
Worrall, L., Davidson, B., Hersh, D., Ferguson, A., Howe, T., & Sherratt, S. (2011). The evidence for relationship-centred practice in aphasia rehabilitation. Journal of Interactional Research in Communication Disorders, 1(2), 277-300. https://doi.org/10.1558/jircd.v1i2.277
