Aitken, P. V. (1999) Incorporating advance care planning into family practice. American Family Physician 59 (3): 605–614, 617–620.

Baughman, K. R., Aultman, J. M., Ludwick, R. and O’Neill, A. (2014) Narrative analysis of the ethics in providing advance care planning. Nursing Ethics 21 (1): 53–63. http://dx.doi.org/10.1177/0969733013486795

Braddock, C., Edwards, K. A., Hasenberg, N. M., Laidley, T. L. and Levinson, W. (1999) Informed decision-making in outpatient practice: Time to get back to basics. Journal of the American Medical Association 282 (24): 2313–2320. http://dx.doi.org/10.1001/jama.282.24.2313

Bradley, N. M. E., Sinclair, E., Danjoux, C., Barnes, E. A., Tsao, M. N., Farhadian, M., Yee, A. and Chow, E. (2006) The do-not-resuscitate order: incidence of documentation in the medical records of cancer patients referred for palliative radiotherapy. Current Oncology 13 (2): 47–54.

Bruner, J. (1986) Actual Minds, Possible Worlds. Cambridge, MA: Harvard University Press.

Bunker, J. P. (2001) The role of medical care in contributing to health improvements within societies. International Journal of Epidemiology 30 (6): 1260–1263. http://dx.doi.org/10.1093/ije/30.6.1260

Byers, J. F. and Melhado, L. (2011) Patients’ and surrogates’ decision-making characteristics: Withdrawing, withholding, and continuing life-sustaining treatments. Journal of Hospice and Palliative Nursing 13 (1): 16–28. http://dx.doi.org/10.1097/NJH.0b013e3182018f09

Castillo, L. S., Williams, B. A., Hooper, S. M., Sabatino, C. P., Weithorn, L. A. and Sudore, R. L. (2011) Lost in translation: The unintended consequences of advance directive law on clinical care. Annals of Internal Medicine 154 (2): 121–128. http://dx.doi.org/10.7326/0003-4819-154-2-201101180-00012

Chapple, A., Ziebland, S., Mcpherson, A. and Herxheimer, A. (2006). What people close to death say about euthanasia and assisted suicide: A qualitative study. Journal of Medical Ethics 32 (12): 706–710. http://dx.doi.org/10.1136/jme.2006.015883

Cheshire, J. and Ziebland, S. (2005) Narrative as a resource in accounts of the experience of illness. In J. Thornborrow and J. Coates (eds) The Sociolinguistics of Narrative, 17–40. Amsterdam: Benjamins. http://dx.doi.org/10.1075/sin.6.02che

Clark, H. H. and Gerrig, R. J. (1990) Quotations as demonstratives. Language 66 (4): 764–805. http://dx.doi.org/10.2307/414729

Coolen, P. (2012) Cultural relevance in end of life care. Ethnomed. Retrieved from: https://ethnomed.org/clinical/end-of-life/cultural-relevance-in-end-of-life-care

Curd, P. R. (1999) Advance care planning reconsidered: Toward an operational definition of outpatient advance care planning. Journal of Palliative Medicine 2 (2): 157–159. http://dx.doi.org/10.1089/jpm.1999.2.157

Curtis, J. R. (2011) Reimbursement for advance care planning: Why should intensivists care? American Journal of Respiratory Critical Care Medicine 184 (4): 387–388. http://dx.doi.org/10.1164/rccm.201106-0981ED

Davies, B. and Harré, R. (1990). Positioning: The discursive production of selves. Journal for the Theory of Social Behavior 20 (1): 43–63. http://dx.doi.org/10.1111/j.1468-5914.1990.tb00174.x

Detering, K. M., Hancock, A. D., Reade, M. C. and Silvester, W. (2010) The impact of advance care planning on end of life care in elderly patients: Randomised controlled trial. British Medical Journal 340 c.1345. http://dx.doi.org/10.1136/bmj.c1345

Drought, T. S. (2000). The Discourse of Advance Care Planning: End-of-life Decision-Making in a Multicultural Population of Oncology and AIDS Patients. Unpublished doctoral dissertation, University of California, San Francisco.

Drought, T. S. and Koenig, B. A. (2002) ‘Choice’ in end-of-life decision-making: Researching fact or fiction? Gerontologist 42 (Special issue 3): 114–128.

Elwyn, G., Edwards, A. and Kinnersley, P. (1999) Shared decision-making in primary care: The neglected second half of the consultation. British Journal of General Practice 49 (443): 477–482.

Emanuel, L. L., Danis, M., Pearlman, R. A. and Singer, P. A. (1995) Advance care planning as a process: Structuring the discussions in practice. Journal of the American Geriatric Society 43 (4): 440–446. http://dx.doi.org/10.1111/j.1532-5415.1995.tb05821.x

Fairman, R. (1992) Withdrawing life-sustaining treatment: Lessons from Nancy Cruzan. Archives of Internal Medicine 125 (1): 25–27. http://dx.doi.org/10.1001/archinte.1992.00400130051003

Field, M. J. and Cassel, C. K. (1997) Approaching Death: Improving Care at the End of Life. Washington, DC: National Academy Press.

Goffman, E. (1981) Forms of Talk. Philadelphia: University of Pennsylvania Press.

Gordy, S. and Klein, E. (2011) Advance directives in the trauma intensive care unit: Do they really matter? International Journal of Critical Illness and Injury Science 1 (2): 132–137. http://dx.doi.org/10.4103/2229-5151.84800

Gramling, D. and Gramling, R. (2012) Laughing at the dark: Tactical humor for autonomous decision-making in serious illness. Journal of Palliative Medicine 15 (11): 1170–1172. http://dx.doi.org/10.1089/jpm.2012.0279

Greco, P. J., Schulman K. A., Lavizzo-Mourey. R. and Hansen-Flaschen, J. (1991) The Patient Self-Determination Act and the future of advance directives. Annals of Internal Medicine 115 (8): 639–643. http://dx.doi.org/10.7326/0003-4819-115-8-639

Green, M. J. and Levi, B. H. (2009) Development of an interactive computer program for advance care planning. Health Expectations 12 (1): 60–69. http://dx.doi.org/10.1111/j.1369-7625.2008.00517.x

Hamilton, H. E. (1998) Reported speech and survivor identity in on-line bone marrow transplanation narratives. Journal of Sociolinguistics 2 (1): 53–67. http://dx.doi.org/10.1111/1467-9481.00030

Hammes, B. J., Rooney, B. L. and Gundrum, J. D. (2010) A comparative, retrospective, observational study of the prevalence, availability, and specificity of advance care plans in a county that implemented an advance care planning microsystem. Journal of the American Geriatric Society 58 (7): 1249–1255. http://dx.doi.org/10.1111/j.1532-5415.2010.02956.x

Heyland, D. K., Allan D. E., Rocker, G., Dodek, P., Pichora, D., Gafni, A. and Canadian Researchers at the End-of-Life Network (CARENET). (2009) Discussing prognosis with patients and their families near the end of life: Impact on satisfaction with end-of-life care. Open Med 3 (2): e101–110.

Hiltunen, E. F., Medich, C. S., Peterson, L. and Forrow, L. (1999) Family decision making for end-of-life treatment: The SUPPORT nurse narratives. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. Journal of Clinical Ethics 10 (2): 126–134.

Hoffmann, D. E., Zimmerman, S. I. and Tompkins, C. J. (1996) The dangers of directives or the false security of forms. Journal of Law, Medicine & Ethics (24) 1: 5–17. http://dx.doi.org/10.1111/j.1748-720X.1996.tb01829.x

Holt, E. (2000) Reporting and reacting: Concurrent responses to reported speech. Research on Language and Social Interaction 33 (4): 425–454. http://dx.doi.org/10.1207/S15327973RLSI3304_04

In der Schmitten, J., Rothärmel, S., Mellert, C., Rixen, S., Hammes, B. J., Briggs, L., Wegscheider, K. and Marckmann, G. (2011) A complex regional intervention to implement advance care planning in one town’s nursing homes: Protocol of a controlled inter-regional study. BMC Health Services Research 11: 14. http://dx.doi.org/10.1186/1472-6963-11-14

Johnstone, B. (1990) Stories, Community and Place: Narratives from Middle America. Bloomington: Indiana University Press.

Karel, M. J., Powell, J. and Cantor, M. D. (2004) Using a Values Discussion Guide to facilitate communication in advance care planning. Patient Education and Counseling 55 (1): 22–31. http://dx.doi.org/10.1016/S0738-3991(03)00246-5

Kass-Bartelmes, B. L. and Hughes, R. (2004) Advance care planning: Preferences for care at the end of life. Journal of Pain & Palliative Care Pharmacotherapy, 18 (1): 87–109. http://dx.doi.org/10.1080/j354v18n01_08

Kwak, J. and Haley, W. E. (2005) Current research findings on end-of-life decision-making among racially or ethnically diverse groups. Gerontologist 45 (5): 634–641. http://dx.doi.org/10.1093/geront/45.5.634

Labov, W. (1972) Language in the Inner City. Philadelphia: University of Pennsylvania Press.

Labov, W. and Fanshel, D. (1977) Therapeutic Discourse: Psychotherapy as Conversation. New York: Academic Press.

Lee, M. A., Brummel-Smith, K., Meyer, J., Drew, N. and London, M. R. (2000) Physician orders for life-sustaining treatment (POLST): Outcomes in a PACE program. Program of All-Inclusive Care for the Elderly. Journal of the American Geriatric Society 48 (10): 1219–1225. http://dx.doi.org/10.1111/j.1532-5415.2000.tb02594.x

Levi, B. H. and Green, M. J. (2010) Too soon to give up? Re-examining the value of advance directives. American Journal of Bioethics 10 (4): 3–22. http://dx.doi.org/10.1080/15265161003599691

Lipkin, K. M. (2006) Brief report: Identifying a proxy for health care as part of routine medical inquiry. Journal of General Internal Medicine 21 (11): 1188–
1191. http://dx.doi.org/10.1111/j.1525-1497.2006.00570.x

Lo, B. and Steinbrook, R. (1991) Beyond the Cruzan case: The U.S. Supreme Court and medical practice. Annals of Internal Medicine 114 (10): 895–901. http://dx.doi.org/10.7326/0003-4819-114-10-895

Long, H. W. (1979) Investment decision-making in the health care industry: The future. Health Services Research 14 (3): 183–205.

Marchand, L., Fowler, K. J. and Kokanovic, O. (2006) Building successful coalitions for promoting advance care planning. American Journal of Hospice and Palliative Care 23 (2): 119–126. http://dx.doi.org/10.1177/104990910602300209

McIntyre, R. L. (1993) The significance of the legacy of Karen Ann Quinlan. Trends in Health Care Law Ethics 8 (1): 7–16.

Modan, G. G. (2007) Turf Wars: Discourse, Diversity, and the Politics of Place. Malden, MA: Blackwell. http://dx.doi.org/10.1002/9780470773970

Morrison, R. S., Olson, E., Mertz, K. R. and Meier, D. E. (1995) The inaccessibility of advance directives on transfer from ambulatory to acute care settings. Journal of the American Medical Association 274 (6): 478–482. http://dx.doi.org/10.1001/jama.1995.03530060052033

Myers, G. (1999) Unspoken speech: Hypothetical reported discourse and the rhetoric of everyday talk. Text 19 (4): 571–590. http://dx.doi.org/10.1515/text.1.1999.19.4.571

Nicholas, J. A. and Hall, W. J. (2011) Screening and preventive services for older adults. Mt Sinai Journal of Medicine 78 (4): 498–508. http://dx.doi.org/10.1002/msj.20275

NHS Improving Quality. (2014) Planning For Your Future Care: A Guide. Retrieved from: http://www.nhs.uk/Planners/end-of-life-care/Documents/planning_for_your_future_updated_sept_2014%20(1).pdf

Parry, R., Land, V. and Seymour, J. (2014) How to communicate with patients about future illness progression and end of life: A systematic review. BMJ Supportive and Palliative Care 4 (4): 331-341. http://dx.doi.org/10.1136/bmjspcare-2014-000649

Perry, J. E., Churchill, L. R. and Kirshner, H. S. (2005) The Terri Schiavo case: Legal, ethical, and medical perspectives. Annals of Internal Medicine 143 (10): 744–748. http://dx.doi.org/10.7326/0003-4819-143-10-200511150-00012

Ramsaroop, S. D., Reid, M. C. and Adelman, R. D. (2007) Completing an advance directive in the primary care setting: What do we need for success? Journal of the American Geriatrics Society 55 (2): 277–283. http://dx.doi.org/10.1111/j.1532-5415.2007.01065.x

Sabatino, C. P. (2010) The evolution of health care: Advance planning law and policy. Milbank Quarterly 88 (2): 211–239. http://dx.doi.org/10.1111/j.1468-0009.2010.00596.x

Schely-Newman, E. (2009) Defining success, defending failure: Functions of reported talk. Research on Language and Social Interactions 42 (3): 191–209. http://dx.doi.org/10.1080/08351810903089142

Schiffrin, D. (1996) Narrative as self-portrait: Sociolinguistic constructions of identity. Language in Society 25 (2): 167–203. http://dx.doi.org/10.1017/S0047404500020601

Shalowitz, D. I., Garrett-Mayer, E. and Wendler, D. (2006) The accuracy of surrogate decision-makers: A systematic review. Archives of Internal Medicine 166 (5): 493–497. http://dx.doi.org/10.1001/archinte.166.5.493

Simmons, K. and LeCouteur, A. (2011) ‘Hypothetical active-voicing’: Therapists ‘modelling’ of clients’ future conversations in CBT interactions. Journal of Pragmatics 43 (13): 3177–3192. http://dx.doi.org/10.1016/j.pragma.2011.06.002

Simpson, C. (2012) Advance care planning in COPD: Care versus ‘code status’. Chronic Respiratory Disease 9 (3): 193–204. http://dx.doi.org/10.1177/1479972312445897

Steinhauser, K., Christakis, N., Clipp, E., Mcneilly, M., Mcintyre, L. and Tulsky, J. (2000) Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA 284 (19): 2476–2482. http://dx.doi.org/10.1001/jama.284.19.2476

Stiggelbout, A. M., Molewijk, A. C., Otten, W., Timmermans, D. R., van Bockel, J. H. and Kievit, J. (2004) Ideals of patient autonomy in clinical decision-making: a study on the development of a scale to assess patients’ and physicians’ views. Journal of Medical Ethics 30 (3): 268–274. http://dx.doi.org/10.1136/jme.2003.003095

Tannen, D. (1989) Talking Voices: Repetition, Dialogue and Imagery in Conversational Discourse. Cambridge: Cambridge University Press.

Temel, J. S., Greer, J. A., Sonal, A., Solis, J., Cashavelly, B. J., Doherty, S., Heist, R. and Pirl, W. F. (2010) Code status documentation in the outpatient electronic medical records of patients with metastatic cancer. Journal of General Internal Medicine 25 (2): 150–153. http://dx.doi.org/10.1007/s11606-009-1161-z

Teno, J. M. (1999) Lessons learned and not learned from the SUPPORT project. Palliative Medicine 13 (2): 91–93. http://dx.doi.org/10.1191/026921699671270463

Teno, J. M., Gruneir, A., Schwartz, Z., Nanda, A. and Wetle, T. (2007) Association between advance directives and quality of end-of-life care: A national study. Journal of the American Geriatric Society 55 (2): 189–194. http://dx.doi.org/10.1111/j.1532-5415.2007.01045.x

Teno, J. M., Licks, S., Lynn, J., Wenger, N., Connors, A. F., Phillips, R. S., O’Connor, M. A., Murphy, D. P., Fulkerson, W. J., Desbiens, N. and Knaus, W. A. (1997) Do advance directives provide instructions that direct care? Journal of the American Geriatric Society 45 (4): 508–512. http://dx.doi.org/10.1111/j.1532-5415.1997.tb05179.x

Vasquez, C. and Urzúa, A. (2009) Reported speech and reported mental states in mentoring meetings: Exploring novice teacher identities. Research on Language and Social Interaction 42 (1): 1–19. http://dx.doi.org/10.1080/08351810802671693

Weiner, J. S. and Cole, S. A. (2004) Three principles to improve clinician communication for advance care planning: Overcoming emotional, cognitive, and skill barriers. Journal of Palliative Medicine 7 (6): 817–829. http://dx.doi.org/10.1089/jpm.2004.7.817

Wilkinson, A., Wenger, N., and Shugarman, L. R. (2007) Literature Review on Advance Directives. Washington, DC: US Department of Health and Human Services.

Witkowski, E., Vanstraelen, E., De Moor, B. and Hardy, F. (2007) The need for care co-ordination in an aging dialysis population. Journal of Renal Care 33 (1): 39–40. http://dx.doi.org/10.1111/j.1755-6686.2007.tb00036.x

Zhang, B., Wright, A. A., Huskamp, H. A., Nilsson, M. E., Maciejewski, M. L., Earle, C. C., Block, S. D., Maciejewski, P. K. and Prigerson, H. G. (2009) Health care costs in the last week of life: Associations with end-of-life conversations. Archives of Internal Medicine 169 (5): 480–488. http://dx.doi.org/10.1001/archinternmed.2008.587