Communication & Medicine, Vol 14, No 3 (2017)

From sense making to decision making when living with cancer

Elizabeth M. Goering, Andrea Krause
Issued Date: 26 Oct 2018


The diagnosis of a catastrophic illness, such as cancer, brings with it a whirlwind of decisions to be made. As healthcare systems rely increasingly on shared decision making (SDM), understanding how patients make sense of health-related information and equip themselves to participate as equal partners in health-related decision making is essential. Coordinated management of meaning’s (CMM) LUUUTT (lived, unknown, untold, unheard, told stories, telling stories) model provides a useful conceptual and methodological framework for better understanding how stories are woven together to create meaning and influence decision making. This Research Note illustrates the potential of applying the LUUUTT model to autoethnographic vignettes and personal health narratives to reach a deeper understanding of the sense-making and decision-making processes related to living with cancer.

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DOI: 10.1558/cam.32234


Connell, C. M. and Crawford, C. O. (1988) How people obtain their health information – A survey in two Pennsylvania counties. Public Health Reports 103 (2): 189–195.

Dohan, D., Garrett, S. B., Rendle, K. A., Halley, M. and Abramson, C. (2016) The importance of integrating narrative into health care decision-making. Health Affairs 35 (4): 720–725.

Eliacin, J., Salyers, M. P., Kukla, M. and Matthias, M. S. (2015) Factors influencing patients’ preferences and perceived involvement in shared decision-making in mental healthcare. Journal of Mental Health 24 (1): 24–28.

Johnson, J. D., Meischke, H., Grau, J. and Johnson, S. (1993) Cancer-related channel selection. Health Communication 4 (3): 183–196.

Joseph-Williams, N., Elwyn, G. and Edwards, A. (2014) Knowledge is not power for patients: A systematic review thematic synthesis of patient reported barriers and facilitators to shared decision-making. Patient Education and Counseling 94 (3): 291–309.

Pearce, W. B. and Cronen, V. (1980) Communication, Action, and Meaning: The Creation of Social Realities. New York: Praeger.

Pearce Associates (2004) Using CMM: The Coordinated Management of Meaning. Woodside, CA: Pearce Associates.

Tardy, R. W. and Hale, C. L. (1998) Bonding and cracking: The role of informal, interpersonal networks in healthcare decision-making. Health Communication 10 (2): 151–173.

Vahabi, M. (2007) The impact of health communication on health-related decision-making: A review of evidence. Health Education 107 (1): 27–41.

Wigfall, T. L. and Tanner, A. H. (2018) Health literacy and health-care engagement as predictors of shared decision-making among adult information seekers in the USA: A secondary data analysis of the Health Information National Trends Survey. Journal of Cancer Education 33 (8): 67–73. DOI:10.1007/s13187-016-1052-z.


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