Negotiating disagreement in picture symbol supported decision making
DOI:
https://doi.org/10.1558/jircd.v7i1.27534Keywords:
PARKINSON’S DISEASE, AIDED COMMUNICATION, TALKING MATS, PICTURES, NEGOTIATION, DECISION MAKINGAbstract
This study explores how meaning is co-constructed and negotiated when couples affected by Parkinson’s disease use a symbol supported decision making process (Talking Mats) to talk about their daily lives. Interaction data from three couples of men with Parkinson’s disease, their female partners and a facilitator were examined using Conversation Analysis (CA). Three negotiation sequences in which the partners disagreed regarding the ability of the person with Parkinson’s disease were used to explore the management of divergent views. Negotiation was an individualized process in which the men with Parkinson’s disease were at risk of not being fully involved. Negative assessment and disagreement were displayed in different ways. Strategies such as the use of pronouns and proper names seemed to play important functions in negotiation. Use of pictures such as with Talking Mats may support the handling of different views but partners need to be aware of the potential difficulties involved.
References
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Asmuß, B. and Oshima, S. (2012). Negotiation and entitlement in proposal sequences. Discourse Studies 14 (1): 67–86. http://dx.doi.org/10.1177/1461445611427215
Baylor, C., Yorkston, K., Eadie, T., Kim, J., Chung, H. and Amtmann, D. (2013). The Communicative Participation Item Bank (CPIB): Item bank calibration and development of a disorder-generic short form. Journal of Speech, Language, and Hearing Research 56 (4): 1190–1208. http://dx.doi.org/10.1044/1092-4388(2012/12-0140)
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Bloch, S., Saldert, C. and Ferm U. (2015). Problematic topic transitions in dysarthric conversation. International Journal of Speech-Language Pathology 17 (4): 373–383. http://dx.doi.org/10.3109/17549507.2014.979879
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Fasulo, A. and Monzoni, C. (2009). Assessing mutable objects: A multimodal analysis. Research on Language and Social Interaction 42 (4): 362–376. http://dx.doi.org/10.1080/08351810903296481
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Griffiths, S., Barnes, R., Britten, N. and Wilkinson, R. (2012). Potential causes and consequences of overlap in talk between speakers with Parkinson’s disease and their familiar conversation partners. Seminars in Speech and Language 33 (1): 27–43. http://dx.doi.org/10.1055/s-0031-1301161
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Hoehn M. M. and Yahr M. D. (1967). Parkinsonism: Onset, progression and mortality. Neurology 17 (5): 427–442. http://dx.doi.org/10.1212/WNL.17.5.427
Kagan, A., Winckel, S., Black, S., Duchan, J., Simmons-Mackie, N. and Square, P. (2004). A set of observational measures for rating support and participation in conversation between adults with aphasia and their conversation partners. Topics in Stroke Rehabilitation 11 (1): 67–83. http://dx.doi.org/10.1310/CL3V-A94A-DE5C-CVBE
Laakso, M., and Klippi, A. (1999). A closer look at the ’hint and guess’ sequences in aphasic conversation. Aphasiology 13 (4–5): 345–363. http://dx.doi.org/10.1080/026870399402136
Lazaraton, A. (1997). Preference organization in oral proficiency interviews: The case of language ability assessments. Research on Language & Social Interaction 30 (1): 53–72. http://dx.doi.org/10.1207/s15327973rlsi3001_2
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Lindström, A. and Heinemann, T. (2009). Good enough: Low-grade assessments in caregiving situations. Research on Language & Social Interaction 42 (4): 309–328. http://dx.doi.org/10.1080/08351810903296465
McNamara, P. and Durso, R. (2003). Pragmatic communication skills in patients with Parkinson’s disease. Brain and Language 84: 414–423. http://dx.doi.org/10.1016/S0093-934X(02)00558-8
Miller, N., Andrew, S., Noble, E. and Walshe, M. (2011). Changing perceptions of self as a communicator in Parkinson’s disease: A longitudinal follow-up study. Disability and Rehabilitation 33 (3): 204–10. http://dx.doi.org/10.3109/09638288.2010.508099
Miller, N., Noble, E., Jones, D. and Burn, D. (2006). Life with communication changes in Parkinson’s disease. Age and Ageing 35 (3): 235–239. http://dx.doi.org/10.1093/ageing/afj053
Miller, N. (2013) Perspectives on participation in acquired motor speech disorders: same or different to aphasia? Lecture at the 4th Nordic aphasia conference, Gothenburg, Sweden.
Milroy, L. and Perkins, L. (1992). Repair strategies in aphasic discourse: Towards a collaborative model. Clinical Linguistics & Phonetics 6 (1–2): 27–40. http://dx.doi.org/10.3109/02699209208985517
Murphy, J. (2000). Enabling people with aphasia to discuss quality of life. British Journal of Therapy and Rehabilitation 7: 454–457. http://dx.doi.org/10.12968/bjtr.2000.7.11.13835
Murphy, J. and Boa, S. (2012). Using the WHO-ICF with Talking Mats to enable adults with long-term communication difficulties to participate in goal setting. Augmentative and Alternative Communication 28 (1): 52–60. http://dx.doi.org/10.3109/07434618.2011.653828
Murphy, J., Gray, C. M., Cox, S., Van Achterberg, T. and Wyke, S. (2010). The effectiveness of the Talking Mats framework with people with dementia. Dementia; International Journal of Social Research and Practice 9 (4): 454–72. http://dx.doi.org/10.1177/1471301210381776
Murphy, J. and Oliver, T. (2013). The use of Talking Mats to support people with dementia and their carers to make decisions together. Health and Social Care in the Community 21 (2): 171–180. http://dx.doi.org.ezproxy.ub.gu.se/10.1111/hsc.12005
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Olaison, A. and Cedersund, E. (2008). Home care as a family matter? Discursive positioning, storylines and decision-making in assessment talk. Communication & Medicine 5 (2): 145–158. http://dx.doi.org/10.1558/cam.v5i2.145
Orange, J. B., Lubinski, R. D. and Higginbotham, D. J. (1996). Conversational repair by individuals with dementia of the Alzheimer's type. Journal of Speech and Hearing Research 39 (4): 881–895. http://dx.doi.org/10.1044/jshr.3904.881
Österholm, J. and Samuelsson, C. (2015). Orally positioning persons with dementia in assessment meetings. Ageing & Society 35 (2): 367–388. http://dx.doi.org/10.1017/S0144686X13000755
Pell, M. and Monetta, L. (2008). How Parkinson’s disease affects non-verbal communication and language processing. Language and Linguistics Compass 2 (5): 739–759. http://dx.doi.org/10.1111/j.1749-818X.2008.00074.x
Pomerantz, A. (1984a). Agreeing and disagreeing with assessments: Some features of preferred/dispreferred turn shapes. In J. M. Atkinson and J. Heritage (Eds) Structures of Social Action Studies in Conversation Analysis, 57–101. Cambridge: Cambridge University Press.
Pomerantz, A. (1984b). Pursuing a response. In J. M. Atkinson and J. Heritage (Eds) Structures of Social Action Studies in Conversation Analysis, 152–163. Cambridge: Cambridge University Press.
Rees, C. E. and Monrouxe, L. V. (2008) ‘Is it alright if I-um-we unbutton your pyjama top now?’ pronominal use in bedside teaching encounters. Communication & Medicine 5 (2): 171–182. http://dx.doi.org/10.1558/cam.v5i2.171
Robinson, J. D. (2006). Managing trouble responsibility and relationships during conversational repair. Communication Monographs 73 (2): 137–161. http://dx.doi.org/10.1080/03637750600581206
Rolland, J. S. (1994). In sickness and in health: The impact of illness on couples’ relationships. Journal of Marital and Family Therapy 20 (4): 327–347. Retrieved 7 June 2015: http://onlinelibrary.wiley.com.ezproxy.ub.gu.se/doi/10.1111/j.1752-0606.1994.tb00125.x/pdf http://dx.doi.org/10.1111/j.1752-0606.1994.tb00125.x
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Saldert, C., Ferm, U. and Bloch, S. (2014). Semantic trouble sources and their repair in conversations affected by Parkinson’s disease. International Journal of Language and Communication Disorders 49 (6): 710–721. http://onlinelibrary.wiley.com/doi/10.1111/1460-6984.12105/full http://dx.doi.org/10.1111/1460-6984.12105
Schegloff, E. A. (2007). Sequence Organization in Interaction A Primer in Conversation Analysis. Cambridge: Cambridge University Press. http://dx.doi.org/10.1017/CBO9780511791208
Sifianou, M. (2012). Disagreements, face and politeness. Journal of Pragmatics 44 (12): 1554–1564. http://dx.doi.org/10.1016/j.pragma.2012.03.009
Takahashi, K., Tickle-Degnen, L., Coster, W. J. and Latham, N. K. (2010). Expressive behavior in Parkinson’s disease as a function of interview context. American Journal of Occupational Therapy 64 (3): 484–495. http://dx.doi.org/10.5014/ajot.2010.09078
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Antaki, C. (2013). Recipient-side test questions. Discourse Studies 15 (1): 3–18. http://dx.doi.org/10.1177/1461445612466450
Asmuß, B. and Oshima, S. (2012). Negotiation and entitlement in proposal sequences. Discourse Studies 14 (1): 67–86. http://dx.doi.org/10.1177/1461445611427215
Baylor, C., Yorkston, K., Eadie, T., Kim, J., Chung, H. and Amtmann, D. (2013). The Communicative Participation Item Bank (CPIB): Item bank calibration and development of a disorder-generic short form. Journal of Speech, Language, and Hearing Research 56 (4): 1190–1208. http://dx.doi.org/10.1044/1092-4388(2012/12-0140)
Bloch, S. and Wilkinson, R. (2011). Acquired dysarthria in conversation: Methods of resolving understandability problems. International Journal of Language & Communication Disorders 46 (5): 510–523. http://dx.doi.org/10.1111/j.1460-6984.2011.00076.x
Bloch. S., Beeke, S. and Miller N. (2011). Acquired communication disorders: Looking beyond impairment. Disability and Rehabilitation: Social Perspectives in Acquired Communication Disorders (Special issue) 33 (3): 175–177. http://dx.doi.org/10.3109/09638288.2010.536295
Bloch, S., Saldert, C. and Ferm U. (2015). Problematic topic transitions in dysarthric conversation. International Journal of Speech-Language Pathology 17 (4): 373–383. http://dx.doi.org/10.3109/17549507.2014.979879
Charles, C., Gafni, A. and Whelan, T. (1997). Shared decision-making in the medical encounter: What does it mean? (Or it takes at least two to tango). Social Science & Medicine 44 (5): 681–692. Retrieved 7 June 2015: http://tinyurl.com/pc6pzkv http://dx.doi.org/10.1016/S0277-9536(96)00221-3
Clark, H. (2005). Coordinating with each other in a material world. Discourse Studies 7 (4–5): 507–525. http://dx.doi.org/10.1177/1461445605054404
Davidson, J. (1984). Subsequent versions of invitations, offers, requests and proposals dealing with potential or actual rejection. In J. M. Atkinson and J. Heritage (Eds) Structures of Social Action Studies in Conversation Analysis, 102–128. Cambridge: Cambridge University Press.
Fasulo, A. and Monzoni, C. (2009). Assessing mutable objects: A multimodal analysis. Research on Language and Social Interaction 42 (4): 362–376. http://dx.doi.org/10.1080/08351810903296481
Ferm, U. (2012). Bilder gjorde det lättare att prata – rapport från ett projekt om samtalsmatta [Pictures made talking easier – A report from a project about TakingMats] Parkinsonjournalen 3: 46–47.
Ferm, U., Eckerholm Wallfur, P., Gelfgren, E. and Hartelius, L. (2012). Communication between Huntington’s Disease patients, their support persons and the dental hygienist using Talking Mats. In N. E. Tunali (Ed.), Huntington’s Disease – Core Concepts and Current Advances, 532–554. InTech. ISBN 978-953-307-953-0. http://dx.doi.org/10.5772/31484
Ferm, U. and Saldert, C. (2013). Disagreements in dental hygienist consultations using Talking Mats: Interaction involving people with Huntington’s disease and their support persons. In N. Norén, C. Samuelsson and C. Plejert (Eds), Aided Communication in Everyday Interaction, 189–238. Salisbury: J&R Press.
Ferm, U., Sahlin, A., Sundin, L. and Hartelius, L. (2010). Using Talking Mats to support communication in persons with Huntington’s Disease. International Journal of Language and Communication Disorders 45 (5): 523–536. http://dx.doi.org/10.3109/13682820903222809
Forsgren, E., Antonsson, M. and Saldert, C. (2013). Training conversation partners of persons with communication disorders related to Parkinson’s disease – a protocol and a pilot study. Logopedics Phoniatrics Vocology 38 (2): 82–90. http://dx.doi.org/10.3109/14015439.2012.731081
Francis, D. W. (1986). Some structures of negotiation talk. Language in Society 15 (1): 53–79. URL: http://www.jstor.org/stable/4167713 http://dx.doi.org/10.1017/S0047404500011647
Gillespie, A., Murphy, J. and Place, M. (2010). Divergences of perspective between people with aphasia and their family caregivers. Aphasiology 24 (12): 1559–1575. http://dx.doi.org/10.1080/02687038.2010.500810
Goodwin, M. H. (2007). Participation and embodied action in preadolescent girls’ assessment activity. Research on Language and Social interaction 40 (4): 353–375. http://dx.doi.org/10.1080/08351810701471344
Goodwin, C. and Goodwin, M. H. (1992). Assessments and the construction of context. In A. Duranti and C. Goodwin (Eds), Rethinking Context Language as an Interactive Phenomenon, 147–189. Cambridge: Cambridge University Press.
Griffiths, S., Barnes, R., Britten, N. and Wilkinson, R. (2012). Potential causes and consequences of overlap in talk between speakers with Parkinson’s disease and their familiar conversation partners. Seminars in Speech and Language 33 (1): 27–43. http://dx.doi.org/10.1055/s-0031-1301161
Hallberg, L., Mellgren, E., Hartelius, L. and Ferm, U. (2013). Talking Mats in a discussion group for people with Huntington’s disease. Disability and Rehabilitation: Assistive Technology 8 (1): 67–76. http://dx.doi.org/10.3109/17483107.2011.644622
Harkness Hodgson, J., Garcia, K. and Tyndall, L. (2004). Parkinson’s disease and the couple relationship: A qualitative analysis. Families, Systems, & Health 22 (1): 101–118. http://dx.doi.org/10.1037/1091-7527.22.1.101
Hoehn M. M. and Yahr M. D. (1967). Parkinsonism: Onset, progression and mortality. Neurology 17 (5): 427–442. http://dx.doi.org/10.1212/WNL.17.5.427
Kagan, A., Winckel, S., Black, S., Duchan, J., Simmons-Mackie, N. and Square, P. (2004). A set of observational measures for rating support and participation in conversation between adults with aphasia and their conversation partners. Topics in Stroke Rehabilitation 11 (1): 67–83. http://dx.doi.org/10.1310/CL3V-A94A-DE5C-CVBE
Laakso, M., and Klippi, A. (1999). A closer look at the ’hint and guess’ sequences in aphasic conversation. Aphasiology 13 (4–5): 345–363. http://dx.doi.org/10.1080/026870399402136
Lazaraton, A. (1997). Preference organization in oral proficiency interviews: The case of language ability assessments. Research on Language & Social Interaction 30 (1): 53–72. http://dx.doi.org/10.1207/s15327973rlsi3001_2
Lindholm, C. and Wray, A. (2011). Proverbs and formulaic sequences in the language of elderly people with dementia. Dementia 10: 603–623. http://dx.doi.org/10.1177/1471301211413338
Lindström, A. and Heinemann, T. (2009). Good enough: Low-grade assessments in caregiving situations. Research on Language & Social Interaction 42 (4): 309–328. http://dx.doi.org/10.1080/08351810903296465
McNamara, P. and Durso, R. (2003). Pragmatic communication skills in patients with Parkinson’s disease. Brain and Language 84: 414–423. http://dx.doi.org/10.1016/S0093-934X(02)00558-8
Miller, N., Andrew, S., Noble, E. and Walshe, M. (2011). Changing perceptions of self as a communicator in Parkinson’s disease: A longitudinal follow-up study. Disability and Rehabilitation 33 (3): 204–10. http://dx.doi.org/10.3109/09638288.2010.508099
Miller, N., Noble, E., Jones, D. and Burn, D. (2006). Life with communication changes in Parkinson’s disease. Age and Ageing 35 (3): 235–239. http://dx.doi.org/10.1093/ageing/afj053
Miller, N. (2013) Perspectives on participation in acquired motor speech disorders: same or different to aphasia? Lecture at the 4th Nordic aphasia conference, Gothenburg, Sweden.
Milroy, L. and Perkins, L. (1992). Repair strategies in aphasic discourse: Towards a collaborative model. Clinical Linguistics & Phonetics 6 (1–2): 27–40. http://dx.doi.org/10.3109/02699209208985517
Murphy, J. (2000). Enabling people with aphasia to discuss quality of life. British Journal of Therapy and Rehabilitation 7: 454–457. http://dx.doi.org/10.12968/bjtr.2000.7.11.13835
Murphy, J. and Boa, S. (2012). Using the WHO-ICF with Talking Mats to enable adults with long-term communication difficulties to participate in goal setting. Augmentative and Alternative Communication 28 (1): 52–60. http://dx.doi.org/10.3109/07434618.2011.653828
Murphy, J., Gray, C. M., Cox, S., Van Achterberg, T. and Wyke, S. (2010). The effectiveness of the Talking Mats framework with people with dementia. Dementia; International Journal of Social Research and Practice 9 (4): 454–72. http://dx.doi.org/10.1177/1471301210381776
Murphy, J. and Oliver, T. (2013). The use of Talking Mats to support people with dementia and their carers to make decisions together. Health and Social Care in the Community 21 (2): 171–180. http://dx.doi.org.ezproxy.ub.gu.se/10.1111/hsc.12005
Oguh, O., Kwasny, M., Carter, J., Stell, B. and Simuni, T. (2013). Caregiver strain in Parkinson’s disease: National Parkinson Foundation quality initiative study. Parkinsonism and Related Disorders 19 (11): 975–979. http://dx.doi.org/10.1016/j.parkreldis.2013.06.015
Olaison, A. and Cedersund, E. (2008). Home care as a family matter? Discursive positioning, storylines and decision-making in assessment talk. Communication & Medicine 5 (2): 145–158. http://dx.doi.org/10.1558/cam.v5i2.145
Orange, J. B., Lubinski, R. D. and Higginbotham, D. J. (1996). Conversational repair by individuals with dementia of the Alzheimer's type. Journal of Speech and Hearing Research 39 (4): 881–895. http://dx.doi.org/10.1044/jshr.3904.881
Österholm, J. and Samuelsson, C. (2015). Orally positioning persons with dementia in assessment meetings. Ageing & Society 35 (2): 367–388. http://dx.doi.org/10.1017/S0144686X13000755
Pell, M. and Monetta, L. (2008). How Parkinson’s disease affects non-verbal communication and language processing. Language and Linguistics Compass 2 (5): 739–759. http://dx.doi.org/10.1111/j.1749-818X.2008.00074.x
Pomerantz, A. (1984a). Agreeing and disagreeing with assessments: Some features of preferred/dispreferred turn shapes. In J. M. Atkinson and J. Heritage (Eds) Structures of Social Action Studies in Conversation Analysis, 57–101. Cambridge: Cambridge University Press.
Pomerantz, A. (1984b). Pursuing a response. In J. M. Atkinson and J. Heritage (Eds) Structures of Social Action Studies in Conversation Analysis, 152–163. Cambridge: Cambridge University Press.
Rees, C. E. and Monrouxe, L. V. (2008) ‘Is it alright if I-um-we unbutton your pyjama top now?’ pronominal use in bedside teaching encounters. Communication & Medicine 5 (2): 171–182. http://dx.doi.org/10.1558/cam.v5i2.171
Robinson, J. D. (2006). Managing trouble responsibility and relationships during conversational repair. Communication Monographs 73 (2): 137–161. http://dx.doi.org/10.1080/03637750600581206
Rolland, J. S. (1994). In sickness and in health: The impact of illness on couples’ relationships. Journal of Marital and Family Therapy 20 (4): 327–347. Retrieved 7 June 2015: http://onlinelibrary.wiley.com.ezproxy.ub.gu.se/doi/10.1111/j.1752-0606.1994.tb00125.x/pdf http://dx.doi.org/10.1111/j.1752-0606.1994.tb00125.x
Ruusuvuori, J. and Peräkylä, A. (2009). Facial and verbal expressions in assessing stories and topics. Research on Language and Social Interaction 42 (4): 377–394. http://dx.doi.org/10.1080/08351810903296499
Saldert, C., Ferm, U. and Bloch, S. (2014). Semantic trouble sources and their repair in conversations affected by Parkinson’s disease. International Journal of Language and Communication Disorders 49 (6): 710–721. http://onlinelibrary.wiley.com/doi/10.1111/1460-6984.12105/full http://dx.doi.org/10.1111/1460-6984.12105
Schegloff, E. A. (2007). Sequence Organization in Interaction A Primer in Conversation Analysis. Cambridge: Cambridge University Press. http://dx.doi.org/10.1017/CBO9780511791208
Sifianou, M. (2012). Disagreements, face and politeness. Journal of Pragmatics 44 (12): 1554–1564. http://dx.doi.org/10.1016/j.pragma.2012.03.009
Takahashi, K., Tickle-Degnen, L., Coster, W. J. and Latham, N. K. (2010). Expressive behavior in Parkinson’s disease as a function of interview context. American Journal of Occupational Therapy 64 (3): 484–495. http://dx.doi.org/10.5014/ajot.2010.09078
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Published
2016-01-08
Issue
Section
Articles
How to Cite
Ferm, U., Bloch, S., & Saldert, C. (2016). Negotiating disagreement in picture symbol supported decision making. Journal of Interactional Research in Communication Disorders, 6(2), 131-156. https://doi.org/10.1558/jircd.v7i1.27534
